The Lily's Hope Foundation was started in honor of our daughter, Lilian Hope, who was born 7 weeks premature, only 2 lbs. 12 oz. and 15 inches long in July 2007. She was born early because of preeclampsia and a placental abruption; small for 33 weeks gestational age. She almost didn't make it through her first day of life, but thanks to the amazing doctors and nurses at Lehigh Valley Hospital, they saved her life. She was on a ventilator and oscillator for 7 days, had a chest tube, and spent almost 1 month in the NICU. Later she had speech and physical therapies. Lily struggled with gastrointestinal issues, failure to thrive, had surgery and saw specialists at Children's Hospital of Philadelphia at age 5.
Additionally our son, Aidan Patrick, who was born October 2013, 3 weeks premature at 5 lbs. 2 oz and 18 1/2 inches long. He has gastrointestinal and pulmonary issues like Lily, as well as severe allergies and asthma due to his prematurity, and sees specialists at Children's Hospital in Philadelphia. He also went through early intervention also for physical and speech therapy like Lily. Lily and Aidan had very rough beginnings, but with their strength, wonderful doctors, hope & prayers, they were able to rise above it all. We remain forever grateful to the great doctors and nurses for saving Lily and Aidan, and would like to help other babies now that have, or will share their experiences.
Immediately upon Lily's birth, we felt compelled to give back for what we had been blessed with. Given the surprise and inability to anticipate premature birth, we saw a need to help families like us that didn't have the time or resources to prepare for their child's early arrival. Additionally, premature babies may have special needs such as specific car seats for infants under 5 pounds, special clothing with buttons and Velcro for cords and IV's, and much more. These additional needs can be hard to find and very expensive in a short amount of time. As we reflected on the needs of families who shared experiences like ours, we wanted to establish the Lily's Hope Foundation to provide resources for premature babies and their families.
Officially in 2013, the Lily's Hope Foundation became a 501(c)(3) nonprofit organization. Our main goal is to help families that are in the NICU and to help make the transition home a little easier. We do this by providing families with essential items since they have been unable to prepare for their child's early arrival. Our Packages of Hope are Transition Home, Hospital, as well as Sibling Care Packages. Our families are referred to us by word of mouth, or by case managers, hospital staff, doctors and nurses from hospitals we support.
2014 was our first full fiscal year in action. We exceeded our original expectations and more than doubled our original budget projections. We assisted 44 families across 8 states, raising over $20,000 in monetary and non-monetary donations. Our families are referred to us by word of mouth, or by case managers, hospital staff, doctors and nurses from hospitals we support in Southeastern Pennsylvania. In 2014 we partnered with Grand View Hospital and St. Luke's Hospital.
2015 was a banner year. We ended up helping 145 families with our Packages of Hope. We held many fundraisers including our 1st Annual Tournament of Hope Golf Outing, our 1st Annual Lily's Loop 5K Family Fun Run, Walk or Stroll in September, and our 8th Annual Lily's Loop at Chestnut Hill College in Philadelphia in October. Additionally we now have a billboard advertising for Lily's Hope in the Lehigh Valley, and we have officially trademarked "Lily's Hope." In 2015 we partnered with Lehigh Valley Hospital NICU.
2016 was just as exciting a year. We held our 1st Annual St. Patrick's Day Party for Preemie's Gala, our Annual Tournament of Hope, Lily's Loop 5K and our 9th Annual Lily's Loop at Chestnut Hill College We have instituted a new inventory system, and helped 253 families in a total of 30 states. In 2016 we partnered with Pocono Medial and St Mary Medical NICU's. We also added the words "aid" and "hope" to our tag line to show the different ways Lily's Hope is assisting our families.
We are thrilled to know we are truly making a difference in the lives of our Lily's Hope families by the wonderful testimonials and thank you notes we have received
Please visit and like our Facebook
pages for updates throughout the next few months, and some exciting projects we're working on this year!
We would love to have your support! Donations
can be made directly to the Lily's Hope Foundation.