Resources for LHF Families
The Lily's Hope Foundation works closely with the following organizations to help support our families:
Lily's Hope Foundation has partnered with the Comfort Suites Allentown @ Dorney Park to provide a discounted rate for our Lily's Hope Families and anyone that wants to be nearby while the baby is in the NICU. Click on the above link, and make a reservation for your family at the low rate of $75/night. At the end of every quarter, Comfort Suites will donate 10% back to Lily's Hope!
We have spoken with the founder of this NICU Parents App, and we love the direction it's headed! To download the app, click the link above. Per their website, "This app is for anyone who has a preemies that is being cared for in the neonatal intensive care unit(also know as the NICU). It provides a dictionary of terms used in the NICU and descriptions who you will meet while there. Along with equipment that may be used on your child."
Is dedicated to keeping the public informed about consumer dangers and safety issues associated with numerous products that can cause the public harm. Our website is continually updated with breaking news from Government agencies, Watchdog Groups, and concerned citizens about Recalls & Safety affecting consumers.
Easterseals Eastern Pennsylvania: http://www.easterseals.com/esep/
Easterseals Eastern Pennsylvania provides a wide range of services to support people with developmental delays, disabilities and other special needs - and their families - in the Lehigh Valley, Berks County and the Poconos. We are a premier provider of Early Intervention services for children starting at birth and also provide developmental screenings for young children to ensure early identification of potential delays when it's most critical. Easterseals offers a broad selection of recreation, social, respite, camping and vocational programs that provide quality, community-based experiences for children, teens, young adults and adults with disabilities and other special needs. We are continuing to expand our range of services to ensure that young adults have the support they need to transition to adulthood successfully.
Greater Goods Lehigh Valley is a community based giving program that specializes in the collection and sale of new and like-new clothing and accessories for online resale, in turn generating revenue for local non-profit organizations. Greater Goods LV is like consignment, but instead of an individual consignor receiving a percentage of the sale, the local non-profit of a clothing donor's choice is the recipient of the sale. When you shop Greater Goods LV, you be able to choose from hundreds of name-brand women's, men's and children's clothing and accessories for sale for just a fraction of retail prices, available to you 24/7, delivered right to your door! Look good and feel good, knowing that your purchase has helped others in your community.
The Lehigh Valley Promise Walk takes place every spring out in Forks Township, PA. The walk raises money and creates awareness about the Preeclampsia Foundation.
"Our mission is to provide a positive and productive environment for moms of multiples to interact and support one another. Together we offer guidance from pregnancy through childhood and can assist with questions related to motherhood and raising multiples. Membership is open to expecting mothers and mothers of multiples (or children born within 3 months of each other) in the Lehigh Valley and surrounding areas." Meetings are the second Thursday of every month at at the First Presbyterian Church, Room 118, 3132 Tilghman St., Allentown, PA. Doors open at 7pm, meeting starts at 7:30. Nursing and bottle fed babies are welcome.
Their mission is "to reduce maternal and infant illness and death due to preeclampsia, HELLP syndrome, and other hypertensive disorders of pregnancy by providing patient support and education, raising public awareness, catalyzing research and improving healthcare practices." Locally in the Lehigh Valley, there is a Promise Walk every spring to raise money and awareness for this wonderful foundation.
"Preemiehelp is a community hub and expert resource, a place where families and friends come together to find easy to understand information, support, and solutions for anyone requiring anything related to preterm birth." Their components of assistance contain information resources, support services, off & online community, expert interaction, prevention strategies and screening & training.
"PreemieWorld was created to help bridge the gap between parent and professional in the NICU, at home and beyond. With books, videos, and other products and tools, the hope is to make everyone's life just a little bit easier as the "new normal" is created in the life of the preemie and his/her family." Their monthly newsletter for professionals and families is packed with valuable information for those close to preemies.
Stork Watch of ResCare HomeCare: http://www.rescare.com
Stork Watch of ResCare HomeCare can provide a skilled high risk obstetrical registered nurse to your home to provide nursing care for those experiencing pre-labor and new birth complications covered by your insurance or Medicaid. Stork Watch (PDF of the Stork Watch Brochure)
Summit View Counseling, LLC is an outpatient mental health provider located in the heart of the Lehigh Valley. Their clinicians have a wealth of experience with post-partum, infertility, grief & loss, dealing with emotional impact of medical crisis, premature births, family & marital conflict. Being a parent is already difficult, being the parent of a NICU preemie adds unique stress, anxiety and emotional turmoil the arrival of a baby. Emotional support is available for parents, siblings and grandparents. Summit View accepts most insurance plans and offers reasonable self pay rates.
The Cord Blood Center: www.cordbloodbanking.com
The goal of the Cord Blood Center is to provide information for expectant mothers and families considering cord blood banking â€“ we want to help you find the right option for your loved ones. Whether you choose private banking for the safety of your family, or public banking to help patients in need of a transplant, The Cord Blood Center is committed to giving you relevant, up-to-date information on benefits, pricing and current research for cord blood stem cells.
The Mommy MD Guides/Momosa Publishing LLC: http://www.mommymdguides.com
These wonderful guide books are filled with tops that doctors who are also mothers use for their own families. There are so many great resources for parents available on their website as well â€“ check them out!